The Polish Amyloidosis Network

The Polish Amyloidosis Network is an educational and scientific project, launched by a group of specialists in various fields, including haematologists, pathologists, nephrologists, cardiologists, neurologists and radiologists, who aim at improving amyloidosis patient care in Poland. The Network has been established to face problems with early and correct diagnosis of various types of amyloidosis in Poland, such as the lack of specialised reference centres. Importantly, a patient with amyloidosis diagnosed at an early stage may live for many years, or even decades, whereas the prognosis in the late-diagnosed amyloidosis, which is predominant in our country, is very unfavourable. The organisation of the project is supported by the Polish Myeloma Consortium.

The main goal of the Polish Amyloidosis Network is to improve the diagnosis and therapy of amyloidosis in Poland. The specific tasks of the project include:

  • Educating physicians and patients about modern diagnostics, causative and supportive therapy for various types of amyloidosis
  • Supporting the establishment of interdisciplinary reference centres or networks of locally cooperating specialised centres, which could offer advanced diagnostics and coordinated treatment of amyloidosis
  • Introduction and popularisation of modern diagnostic methods, in particular amyloid typing techniques

One of the methods of educating and promoting the cooperation of physicians of various specialties is organisation of nationwide and local scientific conferences on amyloidosis. In October 2017, Interdisciplinary Conference “Amyloidosis” was held for the first time at the Maria Skłodowska-Curie Institute of Oncology in Warsaw. During this conference, Prof. Giovanni Palladini and Dr. Paolo Milani – specialists from one of the world’s most recognised centres dealing with amyloidosis, the Amyloidosis Center in Pavia, Italy, presented the latest standards for the management of this disease. What is even more important, the cooperation established during the Conference enabled Polish projects to start, which will certainly improve the diagnosis of amyloidosis in Poland.

We hope that the joint efforts of the specialists in various fields cooperating within the Polish Amyloidosis Network will contribute to rapid improvement of diagnostics and treatment of this rare disease in our country.

Please note that the English version of the website is abridged; the Polish version includes also a comprehensive compendium for patients, useful information for physicians, news, and regularly updated event calendar.

Editor in Chief
Prof. Krzysztof Jamroziak MD., Ph.D

About us

Editor in Chief

Prof. Krzysztof Jamroziak MD, PhD

Prof. Krzysztof Jamroziak MD, PhD is currently the Head of the Lymphoproliferative Diseases Ward in the Department of Haematology of Institute of Haematology and Transfusion Medicine in Warsaw, Poland. Between 2007 and 2013 he was an assistant professor at the Department of Haematology, Medical University of Lodz.

His major scientific interests include the design and conduct of investigator-initiated clinical trials in haematooncology, pharmacogenomics of anti-cancer agents, and genetic markers of susceptibility, sensitivity to treatment and prognosis of human haematologic malignancies, mainly plasma cell malignancies (especially multiple myeloma, AL amyloidosis and MGUS), and chronic lymphocytic leukaemia. He co-authored more than 100 scientific publications, published in prestigious foreign and domestic haematologic and oncologic journals.  Prof. Jamroziak is also the vice-President of the Polish Myeloma Consortium (PMC), and an active member of the Polish Myeloma Group, and  the Polish Adult Leukaemia Group (PALG). Within these organisations, he is involved mostly in the development of clinical trials initiated in Poland.

For the past several years, Prof. Jamroziak’s goal has been the improvement of the recognition and treatment of various types of amyloidosis in Poland. Prof. Jamroziak is the initiator of the the Polish Amyloidosis Network, an interdisciplinary organisation focused on the education of physicians and patients, and the promotion of scientific and clinical research on this rare group of diseases. Since 2017, he has also been the main organiser of the annual scientific conferences „Amyloidosis”, addressed to specialists in various fields dealing with the diagnosis and therapy of amyloidosis.

Assistant Editor

Bartosz Puła, MD, PhD

Bartosz Puła, MD, PhD graduated from the Faculty of Medicine at the Medical Academy in Wroclaw in 2011. After graduation, he started the specialisation training in pathomorphology at the Lower Silesian Oncology Center, at the same time conducting research at the Department of Histology at the Medical University of Wroclaw. He conducted many scientific projects on biology, diagnostics and treatment of cancers, especially breast, lung, and colon cancer. In 2014, he started the specialisation training in haematology at the Department of Haematology, at the Institute of Haematology and Transfusion Medicine in Warsaw. His current scientific interests focus on the pathogenesis, diagnostics, pharmacogenomics and individualised treatment of chronic lymphocytic leukaemia, multiple myeloma and amyloidosis. He is an author or a co-author of over 90 scientific articles, published in international and domestic haematologic and oncologic journals. His scientific achievements have been acknowledged by a START Scholarship of the Foundation for Polish Science, and the Scholarship for Outstanding Young Scientist by the Minister of Science and Higher Education. Dr. Puła is the president of the Young Haematologist Club of the Polish Society of Haematologists and Transfusionists, and an active member of the Polish Myeloma Group, and the Polish Adult Leukaemia Group. Within these organisations, he participates in the organisation of translation medicine research, and clinical trials. Since 2017, he is the assistant editor-in-chief of the „Hematologia” journal.

Assistant Editor

Sonia Dębek, MSc, BA

Sonia Dębek graduated from biotechnology at the Institute of Genetics and Biotechnology of the University of Warsaw, majoring in molecular biotechnology, as well as from English Studies at the Institute of English Studies, the University of Warsaw. She devoted her scientific work to RNA metabolism, especially to post-transcriptional stages. In addition to her work within the diploma theses, she gained experience in the laboratories of the Rockefeller University in New York, and the Institute of Molecular Biology in Mainz (Germany), as well as at the University of Antwerp (Belgium). After graduation, she worked in the Clinical Trials Department of the Institute of Haematology and Transfusion Medicine. Currently, she is a PhD candidate, and conducts her research on non-canonical functions of PIM kinases in Diffuse Large B-Cell Lymphoma, at the Institute of Haematology and Transfusion Medicine.

Advisory board

Experts watching over the reliability and the highest quality of the website.

Wiesław Wiktor Jędrzejczak
Wiesław Wiktor Jędrzejczak
Prof. MD, PhD
Anna Dmoszyńska
Anna Dmoszyńska
Prof. MD, PhD
Jacek Grzybowski
Jacek Grzybowski
Prof. MD, PhD
Justyna Szczygieł
Justyna Szczygieł
MD, PhD
Magdalena Durlik
Magdalena Durlik
Prof. MD, PhD
Wojciech Wołyniec
Wojciech Wołyniec
MD, PhD
Agnieszka Perkowska-Ptasińska
Agnieszka Perkowska-Ptasińska
MD, PhD
Monika Prochorec-Sobieszek
Monika Prochorec-Sobieszek
Prof. MD, PhD
Anna Kostera-Pruszczyk
Anna Kostera-Pruszczyk
Prof. MD, PhD
Marta Lipowska
Marta Lipowska
MD, PhD
Renata Talar-Wojnarowska
Renata Talar-Wojnarowska
MD, PhD