Useful links

Associations and support groups for amyloidosis patients

Poland

• Association of Patients with TTR Amyloidosis (for patients with hereditary transthyretin amyloidosis – ATTRm)
• Carita Foundation (for patients with AL amyloidosis)

Worldwide

• The Amyloidosis Foundation (USA)
• Amyloidosis Support Groups (USA)
• The Australian patients website of Amyloidosis Australia
• The on-line mailing list for patients with amyloidosis in the USA

Societies and scientific organisations dealing with amyloidosis

• International Society of Amyloidosis
• Amyloidosi Research Consortium

Major centres dealing with amyloidosis

Europe

• National Amyloidosis Centre, University College London, Wielka Brytania
• Amyloidosis Research and Treatment Center, University of Pavia, Włochy
• University Medical Center Groningen, Holandia
• Amyloidose Zentrum, Universytet w Heidelbergu, Niemcy

USA

• Amyloidosis Center, Boston University, USA
• Mayo Clinic, USA

Registries related to amyloidosis

1. The Registry of mutations of amyloid proteins
2. The Registry of mutations of hereditary auto-inflammatory diseases
3. The Familial Amyloidotic Polyneuropathy World Transplant Register (FAPWTR) and the Domino Transplant Register

Apps

• Amyloidosis Clinical Resources
  Useful and updated information for professionals (physicians, scientists), regarding the diagnosis and treatment of major types of amyloidosis.
  Aplikacja dostępna w sklepach:
  • App Store dla urządzeń z systemem iOS (iPhone, iPad)
  • Google Play (urządzenia z systemem Android)